Victoria Angel

Options for Parents

Important Information for Parents Wishing to Donate

ACCEPTANCE CRITERIA

Many criteria are examined to determine acceptance to the program. Both Mother and Father must complete all forms.

  • Birth mothers must never have tested positive for HIV or be a Hepatitis B or C carrier
  • Birth mothers must be > 18 years of age
  • Must register prior to 34 weeks gestation
  • Singleton birth – no twins/ triplets can be accepted
  • Health and risk restrictions are set by the AABB/ World public banking standards:
    • Review of health, obstetrical, and genetic history
    • Review of previous travel destinations
    • No tattoo, accupuncture or piercing in last 12 months
    • No treatment for sexually transmissible disease in last 12 months
  • Birthing Centre Location – parents giving birth in selected Southern Ontario Cities only*
  • Health professional cooperation
  • Current number of participants in the VAR program
  • Willingness to meet the program guidelines
  • Parents do not pay any fees for their participation in the public bank program. **
  • Parents relinquish all ownership and rights to the cord blood.
  • Not all donated cord blood samples will be stored; screening criteria set by the AABB must be followed and specific blood volumes/ cell counts are required. Those high-quality samples with higher numbers of stem cells will be stored for use in medical treatment. Typically in all public cord blood banks world-wide, the majority of samples are used in much-needed research projects.  Parents must understand that, in most cases, the cord blood will not be available to them in the future.
  • Parents cannot choose to donate and store privately for one birth. There is only enough cord blood to do one or the other.
  • If parents are not eligible for the program, they may decide to donate their cord blood to research or may want to investigate the option of family banking. Information will be provided upon request to CFL's website

* Hospitals serviced by our bedside pickup service include the following hospitals:  Ajax Pickering, Brantford General, Cambridge Memorial, Credit Valley, Georgetown, Grand River, Guelph General, Humber River (Church & Finch), Joseph Brant Burlington, Markham Stouffville, McMaster, Milton District, Mt. Sinai Toronto, North York General, Oakville Trafalgar, Scarborough Centenary/ General/ Grace, Southlake, St. Joseph’s Hamilton, St. Joseph’s Toronto, St. Michael’s Toronto, Toronto East General, Trillium Health Centre (Mississauga), William Osler (Brampton Civic & Etobicoke), Women’s College, York Central.

**All other locations: Parents are asked to have a friend or family member deliver the sample to the laboratory at Toronto General Hospital or pay the cost of shipping to help reduce the financial strain on the non-profit public bank. As funding is increased, this will not be required.

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VICTORIA ANGEL REGISTRY OF HOPE: HOW DOES IT WORK?

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  1. Prior to the 34th week of pregnancy, parents must complete a detailed Medical application. This is reviewed by our medical team and, if acceptable, the parents are accepted to the program. If not acceptable, parents may donate their cord blood directly to VAR’s research projects or parents may refer to information on family banking.
  2. Accepted parents: Registered Nurses will review the program and the terms of the informed consent agreement with the birthing mother. Fathers are welcome to attend. This can be done by phone or in person.
  3. Parents are asked to speak to their Health Care Professional prior to the baby’s birth to ensure the he/ she will collect the cord blood and maternal blood at no fee. Most doctors and midwives are agreeable.
  4. Parents are provided with a collection kit at no charge.
  5. The collection kit is taken to the birth. The health care professional collects the blood and completes the necessary paperwork. Fathers/ birth partners may be asked to package the cord blood. Video instructions are included with the kit. 
  6. The cord blood and maternal blood is shipped back to the Cells for Life laboratory for processing within 24 – 40 hours.  * In some locations, parents are asked to share the cost of shipping to help reduce the financial strain on the public bank. As funding is increased, this will not be required.
  7. Samples that meet required guidelines are processed to isolate the stem cells from the blood then frozen and stored. All other samples are submitted to research projects and/or discarded. 
  8. Medical testing is completed on the sample itself and the birth mother’s maternal blood.
  9. The parents of baby’s whose samples have been stored will be contacted 3 months after birth to review the baby’s health since birth.   
  10. The cord blood sample information is made anonymous. All donor information is removed from the sample and the testing information. The HLA tissue type is entered into our inventory system for transplant physicians to access.
 
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Parent Choices

Parent Choices
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Parent's Options

OPTION COST AVAILABILITY CONSIDERATIONS

 

Donate Cord Blood to a Public Bank

Parents choose to donate their baby’s cord blood to a public cord blood bank for it to be used in research or medical treatment of people in need.

There are three Canadian Public Banks:
-Victoria Angel Registry of Hope* (VAR) in Toronto.
-Alberta Public Bank, Edmonton
-Hema-Quebec, Montreal

*VAR is a nonprofit organization servicing parents who deliver at selected hospitals in Southern Ontario.

 

No cost to parents.

The public bank covers all  costs including collection, laboratory processing , freezing, storage, medical testing and HLA typing.

Typically public cord blood banks charge $25,000 to $30,000 to release a selected sample. This helps the bank to recover costs associated with running their programs. Health insurance or provincial health plans usually cover these costs.

At VAR, the goal is to provide Canadian transplant centres with selected samples free of charge, although shipping charges may apply. Samples released internationally will be charged current rates.

 

 

Parents relinquish all rights to the cord blood sample.

The sample will not be stored unless it meets the specific requirements for public banking (stem cell counts, blood volumes, medical testing results).

If the sample doesn’t meet requirements for medical use, the cord blood will be donated to research and/or discarded.   

In most cases, donated samples will not be available to the parents in the future.      

Most donated samples are dedicated to research.  Most banks store about 20% of all donated samples.

 

Most parents do not have access to public banking in Canada.  Ask your physician if public banking is available to you.

Parents must pre-register before 34 weeks gestation in order to complete the medical screening process.

Parents are required to organize the collection and shipping of the cord blood.  The birth mother must complete medical testing at birth.

Public banks need samples from all ethnic groups because it is much harder for people in these groups to find a suitable bone marrow donor. Publicly banked cord blood samples help those people.

 

 

 

Save Cord Blood for Your Family

Cord Blood is collected at birth and stored for the family to use should they need it at any time in the future.

www.cellsforlife.com

 

~$900 for the initial collection kit/ medical testing and cord blood processing. (Three installments of $300)

$125 per year for storage.

Installment/ financing plans available.

 

Immediately available at any time in the future. Medical treatment is not delayed. 

Available for the child or any other family member who is a suitable match to the sample.  50% chance of being a suitable match to a sibling.

 

Generally, probability of using a sample is estimated anywhere between 1 in 2,700  to  1 in 10,000 based on current treatments.  In March 2008, Neitfeld  et al state that the chances of using a sample are 1 in 450  (by the age of 70).

For most Canadians who want to store the cord blood, this is the only option. Public banking is limited. 

This is particularly important for families who may have mixed or varied cultural backgrounds. Individuals from those families are unlikely to find a suitable bone marrow donor should the need arise.  

 

Donate Cord Blood to Research

There are many different research programs that are always in need of samples.

 

No cost.

 

Parents will relinquish all rights to the cord blood sample.

Sample will not be available for future use.

 

Continued research is important and samples are needed.  Samples donated to research are destroyed as part of the research project. They will not be used clinically to treat patients.

 

Discard in Medical Waste
Unfortunately, over 95% of births in Canada do not have the cord blood collected. The placenta and umbilical cord are thrown away.

 

No cost.

 

Over 325,000 umbilical cords are disposed of as medical waste each year in Canada. Over 4 million, in the USA have the same fate.

 

These valuable cells are disposed of as biological waste and are available to no one.

 

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Canada’s Public Cord Blood Banks

Unlike most other developed countries, Canada does not have a national public cord blood banking system.

Aside from the Quebec provincial government funding a public cord blood bank in Montreal, no other government funding has been available despite many requests and proposals from various organizations, including Victoria Angel Registry of Hope.

While many Canadian parents are unable to donate their baby’s cord blood to public banks, all Canadians can benefit from donated samples in two ways:

  1. Cord blood samples stored in public banks can be used by all Canadians in need upon request from a transplant physician.
  2. Researchers will use donated samples to develop new applications that will benefit everyone.

Funding is the limiting factor for Victoria Angel Registry of Hope. We are a non-profit organization. As we receive more funds, we will accept more donated samples for storage and research purposes. Our laboratory has the capacity to store 125,000 samples.

CANADA'S PUBLIC BANKS

Work with parents who meet specified requirements and deliver in the following serviced areas

Victoria Angel Registry of Hope

*Parents who do not deliver at these hospitals may be considered only if shipping charges are not required. In these cases, parents are asked to have a friend or family member deliver the sample to the laboratory at Toronto General Hospital or pay the cost of shipping to help reduce the financial strain on the non-profit public bank.

Parents must deliver at the following hospitals*:
Ajax Pickering
Brantford General
Cambridge Memorial
Credit Valley
Georgetown
Grand River
Guelph General
Humber River (Church and Finch)
Joseph Brant Burlington
Lakeridge Oshawa General
Markham Stouffville
Mc Master
Milton District
Mt Sinai (Toronto)
North York General
Oakville Trafalgar
Scarborough Centenary/ General/ Grace
Southlake
St Joseph’s Hamilton
St Joseph’s Toronto
St Michael’s Toronto
Toronto East General
Trillium Health Centre – Mississauga
William Osler – Brampton Civic & Etobicoke
Women’s College
York Central

Héma-Québec

Works with parents who give birth at selected hospitals in Montreal and Quebec City – Contact Héma-Québec website directly for more information

Alberta Public Cord Blood Bank

Edmonton – Contact bank directly

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